Deciding to join a clinical trial can feel daunting, especially with the myths and misconceptions that surround them. Let’s take a moment to clear the air and set the record straight about what clinical trials really mean for you as a patient.
Myth #1: “I’m Just a Lab Rat”
Contrary to popular belief, participating in a clinical trial doesn’t mean you’re a “lab rat.” Clinical trials are structured and monitored at every stage, ensuring your safety and well-being. Whether you’re starting your first treatment or looking for new options after standard therapies, clinical trials offer a range of choices tailored to your specific situation. And, with extra monitoring from a dedicated team, you’re in good hands every step of the way. In addition, your hands are not tied to the trial. Patients have the right to exit the trial at any time point although it is encouraged that patients and caregivers discuss their concerns and alternative options first with their providers before making a big decision.
Myth #2: “It’s Just a Last Resort”
Many patients worry that clinical trials are only suggested when all other options have failed. In reality, clinical trials are available at various stages of treatment, offering cutting-edge therapies that may not yet be widely available. This isn’t about last-ditch efforts—it’s about exploring every possible avenue to improve your care and outcomes. For example, the standard of care for completely resected high-risk melanoma is immunotherapy using checkpoint inhibitors. However there ongoing trials looking at adding mRNA vaccine in addition to checkpoint inhibitors with the goal of “teaching” your immune system while “boosting” the immune response!
Myth #3: “The Doctor Is In It for the Money”
It’s easy to think that financial motives might drive the recommendation of a clinical trial. While doctors and their institutions do receive compensation for conducting research, this is primarily to cover costs like staff and administrative expenses. Ethical standards are in place to ensure that your care comes first, not the doctor’s paycheck. Personally, I have not taken one dime from the research grant funds totaling almost $6-7 million over the last 5-7 years provided to my hospital. Clinical research costs money with labs, scans, visits, data managers, research coordinators, regulatory coordinators, administrators, etc. There is a whole separate “research village of folks” that are involved in the conduct of a clinical trials again separate from the clinical teams of nurses, medical assistants, extenders, pharmacists etc. that cares for patients in the clinic.
The Bottom Line: Clinical Trials Are About Advancing Care
Participating in a clinical trial can give you access to the latest treatments and the opportunity to contribute to future breakthroughs in cancer care. Your participation is highly valued, and the decision to join a trial should be based on a clear understanding of the benefits and risks, discussed openly with your healthcare team. New therapies not only potentially help you as a patient, but also help everyone else in the future who will also be in a similar situation.
Remember, you’re not just another number in a study; you’re a key player in advancing medical science. So, next time your doctor mentions a clinical trial, know that it’s not about being a guinea pig—it’s about taking an informed step toward the best possible care. Know the standard of care for your unique situation as Option 1 and what are the clinical trials as additional Options. Know the pros, cons, risks, benefits, uncertainties and controversies then make your best-informed decision with your family.
Stay Informed
For more information about different clinical trial options, visit http://www.clinicaltrials.gov or check out our blog for the latest in research and clinical advances.
For more insights into participating in clinical trials, be sure to visit our other posts below. You will find valuable information on what to expect, the benefits and risks, and how to get involved. Dive deeper into the world of clinical research.
Navigating a clinical trial: How do I get started? – MedOncMD
The Drawbacks of Participating in Clinical Trials – MedOncMD
The Top Seven Benefits of Clinical Trial Participation – The essentials (medoncmd.com)
About the Author
Dr. Sajeve Thomas is a distinguished medical professional and a compassionate guide in the field of oncology. With over a decade of dedicated experience as a board-certified medical oncologist/internal medicine specialist, Dr. Thomas has become a trusted expert in the treatment of melanoma, sarcoma, and gastrointestinal conditions. Currently practicing at the renowned Orlando Health Cancer Institute, he brings a wealth of expertise to the complex and challenging world of oncology.